Purpose of this Study
This study is a research study that watches how a vision problem changes over time. The condition is called Stargardt disease or Stargardt type macular dystrophy, which affects how well a person can see. Researchers will follow people with this condition and collect information to learn how vision changes. The goal is to better understand the disease so doctors can improve care and treatment in the future.
Who Can Participate?
Eligibility
People can join this study if they are 18 years old or older and have been diagnosed with a vision disease called Stargardt disease or a similar condition that affects the back of the eye. They cannot join if they have uncontrolled glaucoma, which is a serious eye disease that can damage vision.
Age Range
18-110
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No
What is Involved?
Description
This study is a research study that watches how a vision problem changes over time. The condition is called Stargardt disease or Stargardt type macular dystrophy, which affects how well a person can see. Researchers will follow people with this condition and collect information to learn how vision changes. The goal is to better understand the disease so doctors can improve care and treatment in the future.
Locations
Duke University Hospital
Visit Timing
Weekdays
Compensation
No
Spanish Materials Available
No
Study Details
Full Title
An Observational Study of Natural Disease Progression in Participants with Macular Dystrophies Expressing a Stargardt-type Clinical Presentation - (Evolve)
Principal Investigator
Oleg
Alekseev
Protocol Number
PRO00119889
NCT ID
NCT07425574
Phase
N/A
Enrollment Status
Open to Enrollment