Purpose of this Study
We are doing this study to learn more about the needs and challenges of Black parents and caregivers who are taking care of children who have special healthcare needs. We want to be able to provide better support for these families in the future.
Who Can Participate?
Eligibility
Adults ages 18+ who:
- Are the parent of a caregiver of a child who is 21 years or younger
- Help their child manage special medical needs (e.g., disabilities, chronic illnesses, or mental health challenges)
Age Range
18-110
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
Yes
What is Involved?
Description
If you choose to join this study, you will:
- Have a phone call with the study team to find out if you are eligible to participate
- Have an online interview with the study team using Zoom
- Get compensation for your time if you finish the interview
Locations
Remote/online
Compensation
Yes
Spanish Materials Available
No
Study Details
Full Title
Centering Black Voices: A Community-Partnered Intervention to Reduce Acute Care Utilization in Black Children with Medical Complexity
Principal Investigator
Michelle
White
Protocol Number
PRO00116088
Phase
Pilot
Enrollment Status
Open to Enrollment