Children with Tricuspid Atresia (CHSS Cohort)

Children with Tricuspid Atresia (CHSS Cohort)

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Purpose of this Study

We are doing this study to learn more about children with tricuspid atresia. We hope to improve care for patients with this condition in the future.

Who Can Participate?

Eligibility

Newborns diagnosed with tricuspid atresia.

Age Range

0-18

Sex/Genders

Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No

What is Involved?

Description

If you agree to join this study you will:
  • Allow Duke staff to review your child's medical history every year
  • Allow staff from the Congenital Heart Surgeons' Society to contact you and review your child's medical history every year

Locations

Duke University Hospital

Visit Timing

Weekdays
Weekends
Evenings

Compensation

No

Spanish Materials Available

Yes

Study Details

Full Title

Tricuspid Atresia: A Congenital Heart Surgeons' Society Inception Cohort Study

Principal Investigator

Joseph
Turek

Protocol Number

PRO00072057

Phase

N/A

Enrollment Status

Open to Enrollment