Purpose of this Study
If you join this research registry, you will be asked to fill out short surveys that take about 10 to 15 minutes each time. These surveys will be done at several times, including your first doctor visit, and then after surgery at 1 year, 2 years, 5 years, and 10 years. The final survey will be completed at your last clinic visit for SCFE.
Who Can Participate?
Eligibility
People can join this study if they are children or teenagers under 18 who have been diagnosed with SCFE. They must be getting their follow up care at a Duke location, or have been treated at Duke before for this condition. Children cannot join if they have certain other health conditions, such as cerebral palsy, spina bifida, or osteogenesis imperfecta.
Age Range
0-18
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No
What is Involved?
Description
The purpose of this project is to collect important information from children and teenagers who have a hip problem called SCFE. Doctors will put this information together in a large research database. Researchers from many places can use this information to study treatments right now and learn which care options may help patients the most.
Locations
Remote/online
Compensation
No
Spanish Materials Available
No
Study Details
Full Title
Slipped Capital Femoral Epiphysis (SCFE) Longitudinal International Prospective Registry
Study Website
Principal Investigator
Melissa
Allen
Protocol Number
PRO00120195
NCT ID
NCT04117841
Phase
N/A
Enrollment Status
Pending Open to Enrollment