Purpose of this Study
In this study, doctors will collect health information from regular medical visits for people who were born with heart disease. Each year, the study team will contact participants to update their health information and ask them to fill out questionnaires. This study lasts for a long time and continues throughout a persons life to help doctors learn more about congenital heart disease.
Who Can Participate?
Eligibility
This study is for people who were born with heart disease. They must have had heart surgery or be getting medical care for their heart condition at a hospital that is part of the CHSS group.
Age Range
0-110
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No
What is Involved?
Description
The purpose of this registry is to collect information from people who were born with heart disease. Doctors will gather details about their health, the treatments they receive, and how they feel in their daily lives. This information will be used for research to help doctors learn the best ways to care for people with congenital heart disease and improve their quality of life.
Locations
Duke University Hospital
Visit Timing
Weekdays
Compensation
No
Spanish Materials Available
No
Study Details
Full Title
Congenital Heart Surgeons? Society ? Congenital Heart Disease Registry
Principal Investigator
Joseph
Turek
Protocol Number
PRO00119004
Phase
N/A
Enrollment Status
Pending Open to Enrollment