DRAGON (Stargardt Disease)

Purpose of this Study

We are doing this study to find out if an experimental drug called tinlarebant is a safe and effective option for people with Stargardt Disease.

Who Can Participate?

Eligibility

Children and adults ages 12-20 who are diagnosed with Stargardt Disease. For more information, contact the study team at sim15@duke.edu.

Age Range

12-20

Sex/Genders

Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No

What is Involved?

Description

If you choose to join this study, you will get a random assignment (like a coin flip) to either take a 5 mg dose of the study drug or a placebo (inactive substance with no drug in it) every day for 24 months. There is a screening period that lasts about 4 weeks to make sure you are eligible to take part in the study. You will visit our clinic for check-ups about 10 times over the course of the study.

Locations

Duke University Hospital

Visit Timing

Weekdays

Compensation

No

Spanish Materials Available

No

Study Details

Full Title

A Phase 1b Open-laben Study to Evaluate the Pharmacokinetics, Pharmacodynamics, Safety, and Tolerability of Tinlarebant in Japanese Subjects with Stargardt Disease and a Phase 2/3 Randomized, Double-masked, and Placebo-controlled Study to Evaluate the Safety, Tolerability, and Efficacy of Tinlarebant in Subjects with Stargardt Disease - DRAGON - LBS-008-CT07

Principal Investigator

Oleg
Alekseev

Protocol Number

PRO00115629

Phase

I

Enrollment Status

Open to Enrollment