DepleTTR-CM (Transthyretin Amyloid Cardiomyopathy)

Purpose of this Study

We are doing this study to find out if an experimental drug called ALXN2220 (the study drug) is a safe and effective option for people with transthyretin amyloid cardiomyopathy (ATTR-CM). The study drug is designed to act as a "depleter," which means its desired function is to target the active removal of pre-existing amyloids and restore the heart's function and elasticity.

Who Can Participate?

Eligibility

Adults ages 18-90 who:
  • Are diagnosed with wild-type ATTR-CM or variant ATTR-CM
  • Are willing to undergo genetic testing for mutations to the TTR gene
  • Have never received any previous treatment with an ATTR amyloid depleter
For more information, contact the study team at matthew.radzom@duke.edu.

Age Range

18-90

Sex/Genders

Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No

What is Involved?

Description

If you choose to join this study, you will get a random assignment (like a coin flip) to either get the study drug or a placebo (inactive substance with no drug in it). Regardless of assignment, everyone in the study will:
  • Visit our clinic about 56 times over the course of 4 years
  • Get an intravenous (IV) infusion of the study drug or placebo once every 4 weeks
  • Fill out questionnaires
  • Have physical exams and various fitness tests done throughout the study to assess heart health and function
The study infusions will take about 1-to-2 hours each time. You will stay in our clinic for 30 minutes after each infusion is done for monitoring.

Locations

Duke University Hospital

Visit Timing

Weekdays

Compensation

Yes

Spanish Materials Available

Yes

Study Details

Full Title

A Phase 3, Randomized, Double-blind, Placebo-controlled, Multicenter Study to Evaluate the Efficacy and Safety of Amyloid Depleter ALXN2220 in Adult Participants with Transthyretin Amyloid Cardiomyopathy (ATTR-CM)

Principal Investigator

Michel
Khouri

Protocol Number

PRO00114661

Phase

III

Enrollment Status

Open to Enrollment