Purpose of this Study
We are doing this study to look at components of the blood to see if there are features that distinguish people with dystonia from people without dystonia. Identifying "biomarkers" in the blood that are associated with dystonia is greatly needed to help more accurately diagnosis dystonia and to identify subsets of dystonias that may have shared mechanisms. Being able to group individuals by underlying mechanisms can guide people with dystonia to the most appropriate future treatments that act specifically to correct one cause or another.
Who Can Participate?
Eligibility
Any adult 18 or older who has been diagnosed with dystonia.
For more information, contact the study team at movdisres@duke.edu.
Age Range
18-110
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
Yes
What is Involved?
Description
If you choose to join this study, it will involve 1 visit that lasts about one and a half hours. During this visit, you will:
- Have a blood draw
- Fill out a survey about your experiences with dystonia
Locations
Duke University Hospital
Visit Timing
Weekdays
Compensation
No
Spanish Materials Available
No
Study Details
Full Title
Dystonia and Movement Disorders Biorepository
Study Website
Principal Investigator
Nicole
Calakos
Protocol Number
PRO00109206
Enrollment Status
Open to Enrollment