Purpose of this Study
If you choose to join this study, we will ask you questions about:
-Your life at home
-Your life at school
-Your medical needs.
We will ask you to answer these questions each year during one of your regular clinic visits.
-Your life at home
-Your life at school
-Your medical needs.
We will ask you to answer these questions each year during one of your regular clinic visits.
Who Can Participate?
Eligibility
- Children and adults ages 6 months-to-25 years old
- Have a diagnosis of intestinal failure with current or prior history of specialized nutritional support
- Have a diagnosis of intestinal failure with current or prior history of specialized nutritional support
What is Involved?
We are doing this study to find out more about the quality of life of children and young adults with intestinal failure (short bowel syndrome) and their families.
Study Details
Full Title
Prospective Multisite Study of Quality of Life in Pediatric Intestinal Failure
Principal Investigator
Debra
Sudan
Protocol Number
PRO00103078
Enrollment Status
OPEN TO ACCRUAL