Purpose of this Study
Researchers will review participants medical records and collect health information for a research repository. During routine blood draws, participants may provide a blood sample, and urine samples may be collected every 3 months. If a participant has a muscle biopsy, leftover tissue may also be stored for research if they agree.
Who Can Participate?
Eligibility
Participants may be able to join if their rheumatic disease began before age 18 and they have juvenile dermatomyositis, systemic lupus erythematosus, juvenile idiopathic arthritis, multiple sclerosis, or another condition involving immune system dysfunction. Participants with either a new diagnosis or an existing diagnosis, including those experiencing a disease flare, may be eligible. They must be willing to provide informed consent.
Age Range
0-25
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
Yes
What is Involved?
Description
This study is creating a research repository that stores health information, blood, urine, and leftover tissue samples from children with rheumatic diseases and from healthy participants. Researchers will use these samples and data to better understand these conditions and support future research.
Locations
Duke University Hospital
Visit Timing
Weekdays
Compensation
No
Spanish Materials Available
No
Study Details
Full Title
JDMS Repository
Principal Investigator
Jeffrey
Dvergsten
Protocol Number
PRO00064031
NCT ID
NA
Phase
N/A
Enrollment Status
Open to Enrollment