National Spina Bifida Patient Registry

Purpose of this Study

We are using you or your child's medical information in this study to better understand the diagnosis, treatment, and complications of Spina Bifida.

Who Can Participate?

Eligibility

Adults and children with Spina Bifida

Age Range

0-110

Sex/Genders

Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
Yes

What is Involved?

If you choose to participate or allow your child to participate in this study, you will allow us to use you or your child's medical information and enter it in a national database.

Locations

Remote/online
Duke University Hospital

Visit Timing

Weekdays

Compensation

No

Spanish Materials Available

Yes

Study Details

Full Title

National Spina Bifida Patient Registry and Urologic Management of Young Children with Spina Bifida - Duke Project

Principal Investigator

John
Wiener

Protocol Number

PRO00034501

Phase

N/A

Enrollment Status

Open to Enrollment