QOL Ped Intestinal Failure (Short Bowel Syndrome)

Purpose of this Study

If you choose to join this study, we will ask you questions about:

Your life at home
Your life at school
Your medical needs

We will ask you to answer these questions each year during one of your regular clinic visits.

Who Can Participate?

Eligibility

Children and adults ages 6 months-to-25 years old who have a diagnosis of intestinal failure with current or prior history of specialized nutritional support.

What is Involved?

Description

We are doing this study to find out more about the quality of life of children and young adults with intestinal failure (short bowel syndrome) and their families.

Study Details

Full Title

Prospective Multisite Study of Quality of Life in Pediatric Intestinal Failure

Principal Investigator

Debra

Sudan

Protocol Number

PRO00103078

Enrollment Status

Open to Enrollment