Purpose of this Study
We are using you or your child's medical information in this study to better understand the diagnosis, treatment, and complications of Spina Bifida.
Who Can Participate?
Eligibility
Adults and children with Spina Bifida
Age Range
0-110
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
Yes
What is Involved?
Description
If you choose to participate or allow your child to participate in this study, you will allow us to use you or your child's medical information and enter it in a national database.
Locations
Remote/online
Duke University Hospital
Visit Timing
Weekdays
Compensation
No
Spanish Materials Available
Yes
Study Details
Full Title
National Spina Bifida Patient Registry and Urologic Management of Young Children with Spina Bifida - Duke Project
Study Website
Principal Investigator
John
Wiener
Protocol Number
PRO00034501
Phase
N/A
Enrollment Status
Open to Enrollment