Purpose of this Study
Participants will be followed for up to 10 years. Information from their pediatric rheumatology clinic visits will be added to a study database at least twice each year. Participants or their parents or guardians will also complete questionnaires during the study.
Who Can Participate?
Eligibility
Participants may be able to join if their rheumatic disease began before age 16 for juvenile idiopathic arthritis or before age 19 for other rheumatic diseases.
Age Range
0-21
Sex/Genders
Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No
What is Involved?
Description
This study collects information over time from children, teens, and young adults with rheumatic diseases that began during childhood. Researchers hope to use this information to better understand these diseases and improve future care and treatments.
Locations
Duke University Hospital
Visit Timing
Weekdays
Compensation
No
Spanish Materials Available
Yes
Study Details
Full Title
Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry
Principal Investigator
Heather
Van Mater
Protocol Number
PRO00063358
NCT ID
NCT02418442
Phase
N/A
Enrollment Status
Open to Enrollment