Children with atrioventricular septal defect (CHSS Cohort)

Purpose of this Study

We are doing this study to learn more about children with atrioventricular septal defect. We hope to improve care for patients with this condition in the future.

Who Can Participate?

Eligibility

Children diagnosed with atrioventricular septal defect.

Age Range

0-18

Sex/Genders

Male (cisgender)
Female (cisgender)
Non-binary or gender fluid
Transgender male
Transgender female
Looking for Healthy Participants
No

What is Involved?

If you agree to join this study you will:<ul>
<li>Allow Duke staff to review your child's medical history every year</li>
<li>Allow staff from the Congenital Heart Surgeons' Society to contact you and review your child's medical history every year</li></ul>

Locations

Duke University Hospital

Visit Timing

Weekdays
Weekends
Evenings

Compensation

No

Spanish Materials Available

Yes

Study Details

Full Title

Atrioventricular Septal Defect: A Congenital Heart Surgeons' Society Inception Cohort Study

Principal Investigator

Joseph
Turek

Protocol Number

PRO00072055

Phase

N/A

Enrollment Status

Open to Enrollment